Who We Are
OUR VISION
Create a world without ALS.
OUR MISSION
Leading the fight to treat and cure ALS through global research and nationwide advocacy while also empowering people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support.
What We Do
The ALS Association is the only not-for-profit health organization in Iowa dedicated solely to the fight against ALS. As the preeminent ALS organization, The Association leads the way in research, patient and community services, public education, and advocacy — giving help and hope to those facing the disease.
The ALS Association, Iowa Chapter provides direct services, resources and support to Iowans affected by ALS through our care services and programs. The core Chapter services include Home Visits, Equipment Loan Program, Quality of Life Grant Program, Patient and Family Support Groups, ALS Specific Clinics, Care Specific Advocacy, Volunteer Family Assistance Program, Communication and Assistive Device Program, Information and Referral Services, Community/Healthcare Education and more.
Over 85% of the money raised through The ALS Association, Iowa Chapter stays local to provide services to Iowan’s impacted by ALS. We also support global, cutting-edge ALS research and participate in state and federal advocacy efforts to find additional treatments and a cure. There are approximately 250 Iowans living with ALS at any given time and our Chapter has grown from providing services to a handful of patients with ALS in the Des Moines area in 2003 to serving 220+ patients statewide in 2016. Additionally, we have developed partnerships with hospitals across the state to ensure people are connected with the services we provide as soon as possible after diagnosis as well as hosting ALS specific clinics at major medical centers across Iowa.
We serve Iowans across the state living with ALS, including the Cedar Valley.
Additional information may be found at tinyurl.com/alsafap.
Details
| (515) 369-2572 | |
| sarah.lettow@als.org | |
| Sarah Lettow | |
| Managing Director, Volunteer Engagement | |
| http://www.als.org |